Rare Bone Disease TeleECHO Clinic Series
Presented by the OI Foundation in partnership with the Rare Bone Disease Alliance.
This series uses Zoom videoconferencing, and will take place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session.
The interdisciplinary faculty in the Rare Bone Disease TeleECHO includes:
Laura Tosi, MD (Head Faculty) Children’s National Health System
Michael Collins, MD National Institutes of Health, NIDCR
Michael Lewiecki, MD University of New Mexico
Frank Rauch, MD Shriners Hospital for Children – Canada
Eric Rush, MD University of Kansas Hospital
Jay Shapiro, MD Uniformed Services University of Health Sciences
Dolores Shoback, MD University of California San Francisco
Michael Whyte, MD Washinton University in St. Louis
In support of improving patient care, this activity has been planned and implemented by the Osteogenesis Imperfecta Foundation and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 1.5 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Click here to view recordings of past ECHO sessions.
PROGRAM SCHEDULE
Click on the session titles below to register to attend.
YEAR 5 PROGRAM SCHEDULE
Please click on the session title to register to attend. All sessions will be held at 3:00pm ET and will last 90 minutes.
Thursday, August 3, 2023; 3:00pm EST
RECORDING: The Genetic Testing has come back: Now What?
Eric Rush MD, FAAP, FACMG Clinical Geneticist at Children’s Mercy Hospital and the University of Kansas Medical Center. Professor of Pediatrics at the University of Missouri-Kansas City.
Thursday, September 7, 2023; 3:00pm EST
RECORDING: Skeletal Effects of Gender-Affirming Medical Therapy in Transgender and Gender-Diverse Youth
Janet Lee, MD, MPH, MAS Janet Lee, MD, MPH, MAS
Thursday, October 5, 2023; 3:00pm EST
RECORDING: New and Emerging Therapeutics for Rare Bone Diseases
Michael Collins, MD National Institute of Dental and Craniofacial Research National Institutes of Health
Thursday, November 2, 2023; 3:00pm EST
RECORDING: Skeletal Nosology
Andrea Superti-Furga, MD, Professor Emeritus University of Lausanne
Thursday, December 7, 2023; 3:00pm EST
Achondroplasia
Julie Hoover-Fong, MD, PhD, FACMGG Professor, Department of Genetic Medicine Director, Greenberg Center for Skeletal Dysplasias Member, Miller-Coulson Academy of Clinical Excellence
RECORDING: Achondroplasia
Thursday, January 4, 2024, 3:00pm EST
Danish Nationwide Register Based OI Research
Lars Folkestad, MD Associate professor and staff specialist at the department of endocrinology at Odense University Hospital
RECORDING: Danish Nationwide Register Based OI Research
Thursday, February 1, 2024; 3:00pm EST
Dental Issues in FOP
Clive S. Friedman, DDS Cert ped Dent Diplomat AAPD, Fellow SCD.Fellow iADH, Board member CSDH, Board Member ICC, Director Tin Soldiers
RECORDING: Dental Issues in FOP
Thursday, March 7, 2024; 3:00pm EST
Cartilage-Hair hypoplasia – Outi Mäkitie, MD, PhD Professor of Pediatric Endocrinology
RECORDING: Cartilage-Hair hypoplasia
Thursday, April 4, 2024, 3:00pm EST
(Rare) disorders of vitamin D receptor and 1-OH ‘lase deficiencies.
Francis Glorieux, OC, MD, PhD
Register Here
Thursday, May 2, 2024, 3:00pm EST
Fibrous Dysplasia/MAS Update
Alison Boyce, MD Chief, Metabolic Bone Disorders Unit
Register Here
Thursday, June 6, 2024; 3:00pm EST
Skeletal Fluorosis (Endemic and Non-Endemic)
Michael P Whyte, MD Emeritus Professor of Medicine Washington University in Saint Louis
Register Here
Thursday, July 4, 2024; 3:00pm EST
TBD
Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.
None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.
Michael Collins, MD; Jay Shapiro, MD; Tracy Hart, BS; Melissa Bonardi, BA, Michael Stewart, MAT; Erika Carter, BS.
The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.
| Name | Company Name | Role/Nature of Relationship |
| Laura Tosi MD | Ultragenyx | Researcher |
| Children’s National Hospital | Employee | |
| Michael E Lewiecki MD | NM Clinical Research | Employee |
| Amgen | Researcher, Consultant, Speaker | |
| Radius | Researcher | |
| Mereo | Researcher | |
| Alexion | Speaker | |
| Pfizer | Researcher | |
| Frank Rauch MD | Ultragenyx | Advisor |
| Genyzme | Advisor | |
| Eric Rush MD | Alexion/Astra Zeneca | Researcher, Consultant, Speaker |
| Ultragenyx | Researcher, Consultant, Speaker | |
| Biomarin | Consultant, Speaker | |
| Inozyme | Consultant | |
| Angitia | Consultant | |
| Ascendis | DMC Member | |
| Dolores Shoback MD | University of CA, San Francisco | Investigator of Multicenter Trial |
| Bone Health Technologies | Investigator on Multicenter Trial | |
| Michael Whyte MD | Aruvant Sciences | Consultant |
| Ultragenyx | Speaker | |
| Merck | Stock |
All of the relevant financial relationships listed for these individuals have been mitigated.
If you have any questions, please contact Melissa Bonardi at MBonardi@oif.org