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X-WR-CALNAME:The Rare Bone Disease Alliance | RBDA
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X-WR-CALDESC:Events for The Rare Bone Disease Alliance | RBDA
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DTSTART;TZID=America/New_York:20261105T150000
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UID:2289-1793890800-1793896200@rbdalliance.org
SUMMARY:RBD ECHO: Intravenous iron-induced hypophosphatemia
DESCRIPTION:Intravenous iron-induced hypophosphatemia \nMyles Wolf\, MD\, MMSc — Division of Nephrology\, Department of Medicine\, and Duke Clinical Research Institute\, Duke \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbdechonovember2026/
LOCATION:MD
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/November-2026.avif
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DTSTART;TZID=America/New_York:20261119T160000
DTEND;TZID=America/New_York:20261119T180000
DTSTAMP:20260915T204421Z
CREATED:20260915T191023Z
LAST-MODIFIED:20260915T204421Z
UID:2333-1795104000-1795111200@rbdalliance.org
SUMMARY:Rare Bone Disease Alliance Scientific Symposium: A Deep Dive into Hypochondroplasia
DESCRIPTION:The Rare Bone Disease Alliance (RBDA) is pleased to invite you to an upcoming RBDA Scientific Symposium on Thursday\, November 19 from 4:00-6:00 EST on hypochondroplasia.  \n\n\nIn this series\, researchers and expert speakers explore developments in rare bone diseases that are at various stages of treatment innovation and understanding of natural history. It is intended for researchers and clinicians interested in rare bone diseases. Developing therapies for rare bone diseases present unique challenges requiring multiple steps\, from identifying cellular pathways and targets to conducting clinical trials in diverse and challenging patient populations. \n\n\nThe goal of the RBDA Scientific Symposiums are to provide a forum for leading experts to share the newest research in rare bone disease and to promote discussion among specialists in the field. This session is intended for scientists\, pharmaceutical representatives\, academic researchers\, and clinicians interested in emerging insights and drug-development potential within rare bone diseases. \n\n\n\nREGISTER HERE \n\nThank you to our industry partners for their support :
URL:https://rbdalliance.org/event/symposiumnov2026/
LOCATION:MD
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/09/RBDA-Scientific-Symposium-2024-1.avif
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DTSTART;TZID=America/New_York:20261203T150000
DTEND;TZID=America/New_York:20261203T163000
DTSTAMP:20260807T162201Z
CREATED:20260807T162201Z
LAST-MODIFIED:20260807T162201Z
UID:2293-1796310000-1796315400@rbdalliance.org
SUMMARY:RBD ECHO: Interpretation of variants of unknown significance in skeletal disease
DESCRIPTION:Interpretation of variants of unknown significance in skeletal disease \nKaren E. Heath\, PhD\, ErCLG — Senior Researcher\, Institute of Medical and Molecular Genetics (INGEMM)\, Hospital Universitario La Paz\, Madrid\, Spain \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-interpretation-of-variants-of-unknown-significance-in-skeletal-disease/
LOCATION:MD
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/December-2026.avif
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