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X-WR-CALDESC:Events for The Rare Bone Disease Alliance | RBDA
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DTSTART;TZID=America/New_York:20260903T150000
DTEND;TZID=America/New_York:20260903T163000
DTSTAMP:20260807T155927Z
CREATED:20260807T155927Z
LAST-MODIFIED:20260807T155927Z
UID:2280-1788447600-1788453000@rbdalliance.org
SUMMARY:RBD ECHO: Pseudoachondroplasia
DESCRIPTION:Pseudoachondroplasia \nJacqueline T. Hecht\, PhD\, MS — Professor of Pediatrics\, Leah Lewis Distinguished Chair\, and Vice-Chair for Research\, Department of Pediatrics\, McGovern Medical School\, UTHealth Houston \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-pseudoachondroplasia/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/September-2026.avif
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T183000
DTEND;TZID=America/New_York:20260910T210000
DTSTAMP:20260807T170840Z
CREATED:20260807T170527Z
LAST-MODIFIED:20260807T170840Z
UID:2301-1789065000-1789074000@rbdalliance.org
SUMMARY:Washington\, DC Metabolic and Rare Bone Disease Club – September 2026
DESCRIPTION:Join the Washington\, DC Metabolic & Rare Bone Disease Club on Thursday\, September 10\, 2026 for a quarterly dinner focused on new developments in research\, diagnosis\, and treatment of metabolic and rare bone disorders. \nSeeing is Believing: Recognizing the Dental Manifestations of XLH\npresented by\n \nJuan F. Yepes DDS\, MD\, MPH\, MS\, DrPH\nPaul E. Starkey Dental Research Professor\, Professor in the Department of Pediatric Dentistry and the Associate Dean for graduate education at Indiana University School of Dentistry and an attending at Riley Children Hospital in Indianapolis\, Indiana. Dr. Yepes is a dentist (DDS) and a physician (MD) from Javeriana University at Bogotá\, Colombia. \nThe goal of the Washington\, DC Metabolic & Rare Bone Disease Club is to bring together endocrinologists\, rheumatologists\, geneticists and orthopaedic surgeons with easy access to innovative and robust data as well as to help them expand their professional relationships across the varied disciplines that care for these challenging patients. We want to include BOTH pediatric and adult practitioners as the natural history of these disorders is changing rapidly\, and we want to help improve care across the age span. Perhaps most importantly\, we want to extend this invitation to interested physicians\, researchers\, physician assistants\, nurse practitioners\, genetic counselors\, fellows\, medical students and other professionals interested in this rapidly changing field as we seek to grow the community of clinicians focused on improving care for these thought-provoking disorders. \nThe programs will be science (not product) focused presentations sponsored by industry partners that do not provide CME. \nAnnual dues will be $50 for practicing physicians/researchers and $25 for physician assistants\, nurse practitioners and genetic counselors. There will be no fee for fellows\, residents\, or medical students. Dinners will be free and will offer a virtual attendance option. Please visit this link to register. \nIf you are interested in presenting a case\, please contact Melissa Bonardi at mbonardi@oif.org
URL:https://rbdalliance.org/event/washington-dc-metabolic-and-rare-bone-disease-club-september-2026/
LOCATION:Pooks Hill Marriott\, 5151 Pooks Hill Rd\, Bethesda\, MD\, 20814\, United States
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/bone-club-september-2026.avif
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261001T150000
DTEND;TZID=America/New_York:20261001T163000
DTSTAMP:20260807T160334Z
CREATED:20260807T160334Z
LAST-MODIFIED:20260807T160334Z
UID:2285-1790866800-1790872200@rbdalliance.org
SUMMARY:RBD ECHO: Radiographic evaluation of non-accidental trauma
DESCRIPTION:Radiographic evaluation of non-accidental trauma \nAlistair Calder\, BM BCH\, FRCR — Consultant Radiologist\, Great Ormond Street Hospital for Children NHS Trust\, London\, UK \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-radiographic-evaluation-of-non-accidental-trauma/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/October-2026.avif
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T180000
DTEND;TZID=America/New_York:20261008T220000
DTSTAMP:20260810T231927Z
CREATED:20260810T184948Z
LAST-MODIFIED:20260810T231927Z
UID:2307-1791482400-1791496800@rbdalliance.org
SUMMARY:ASBMR Rare Bone Disease Reception
DESCRIPTION:ASBMR Reception: \nThursday\, October 8th\, 2026\nHaynes Convention Center Boston\, Rm 210\n6:00pm – 10:00m\nThe Rare Bone Disease Alliance invites attendees of the ASBMR annual meeting to a rare bone disease reception scheduled for Thursday\, October 8th 2026 at 6pm\, following the American Society of Bone and Mineral Research Rare Bone Disease Pre-Meeting. \nThe goal of the RBDA Rare Bone Disease Reception is to provide opportunities for collaboration and mentorship between researchers and clinicians in all stages of their career and help foster an interest in rare bone disease as a field of study. Attendees will learn about diagnosis and possible treatments for rare bone diseases and the importance of partnering with patient advocacy groups. Our hope is to encourage the development of talent in the rare bone disease scientific and clinical pipeline. \nWe will also be hosting a Rapid Poster Presentation. To be considered for selection to present your poster\, please email your abstract to mbonardi@oif.org. RBDA representatives\, patient advocacy organizations\, and RBDA physician leaders will be present to discuss the importance of rare bone disease research. \nFood and beverages will be provided. We encourage all investigators and clinicians interested in rare bone research to join us! \nCheck back soon for the agenda. Please RSVP here. \n\n  \nThe RBDA would like to thank our industry partners for their support
URL:https://rbdalliance.org/event/asbmr-rare-bone-disease-reception/
LOCATION:Haynes Convention Center Boston\, 900 Boylston St\, Boston\, MA\, 02115\, United States
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/RBDA-one-pager.avif
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DTSTART;TZID=America/New_York:20261105T150000
DTEND;TZID=America/New_York:20261105T163000
DTSTAMP:20260807T161335Z
CREATED:20260807T161335Z
LAST-MODIFIED:20260807T161335Z
UID:2289-1793890800-1793896200@rbdalliance.org
SUMMARY:RBD ECHO: Intravenous iron-induced hypophosphatemia
DESCRIPTION:Intravenous iron-induced hypophosphatemia \nMyles Wolf\, MD\, MMSc — Division of Nephrology\, Department of Medicine\, and Duke Clinical Research Institute\, Duke \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbdechonovember2026/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/November-2026.avif
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261203T150000
DTEND;TZID=America/New_York:20261203T163000
DTSTAMP:20260807T162201Z
CREATED:20260807T162201Z
LAST-MODIFIED:20260807T162201Z
UID:2293-1796310000-1796315400@rbdalliance.org
SUMMARY:RBD ECHO: Interpretation of variants of unknown significance in skeletal disease
DESCRIPTION:Interpretation of variants of unknown significance in skeletal disease \nKaren E. Heath\, PhD\, ErCLG — Senior Researcher\, Institute of Medical and Molecular Genetics (INGEMM)\, Hospital Universitario La Paz\, Madrid\, Spain \nREGISTER HERE TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-interpretation-of-variants-of-unknown-significance-in-skeletal-disease/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/08/December-2026.avif
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