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PRODID:-//The Rare Bone Disease Alliance | RBDA - ECPv6.17.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://rbdalliance.org
X-WR-CALDESC:Events for The Rare Bone Disease Alliance | RBDA
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260604T150000
DTEND;TZID=America/New_York:20260604T163000
DTSTAMP:20250919T163010Z
CREATED:20250919T163010Z
LAST-MODIFIED:20250919T163010Z
UID:2052-1780585200-1780590600@rbdalliance.org
SUMMARY:RBD ECHO: Osteoblast-Driven High Bone Mass Diseases
DESCRIPTION:Osteoblast-Driven High Bone Mass Diseases\nNatasha Appelman-Dijkstra\nProfessor of Bone and Mineral Disorders\, Director Academic Training Program Internal Medicine\, Chair Center for Bone quality Leiden\nLeiden University Medical Center (LUMC)\, the Netherlands \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-osteoblast-driven-high-bone-mass-diseases/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/June-2026-RBDA-Echo.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T150000
DTEND;TZID=America/New_York:20260507T163000
DTSTAMP:20260313T214302Z
CREATED:20260313T214138Z
LAST-MODIFIED:20260313T214302Z
UID:2212-1778166000-1778171400@rbdalliance.org
SUMMARY:RBD ECHO: Skeletal Dysplasias in the Plain Community
DESCRIPTION:Skeletal Dysplasias in the Plain Community\nGrace Loudon Meier\, MD \nFamily Medicine Physician; Director of Adult Services Program\, Clinic for Special Children\, Pennsylvania \nREGISTER HERE! \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-skeletal-dysplasias-in-the-plain-community/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2026/03/May-2026.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260402T150000
DTEND;TZID=America/New_York:20260402T163000
DTSTAMP:20250919T162406Z
CREATED:20250919T162406Z
LAST-MODIFIED:20250919T162406Z
UID:2049-1775142000-1775147400@rbdalliance.org
SUMMARY:RBD ECHO: Precision Medicine Modeling of New Skeletal Disorders
DESCRIPTION:Precision Medicine Modeling of New Skeletal Disorders\nLindsay C. Burrage\, MD\, PhD\nAssociate Professor\, Department of Molecular and Human Genetics; Attending Physician\, Inborn Errors of Metabolism & Skeletal Dysplasia Clinics\, Baylor College of Medicine \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-precision-medicine-modeling-of-new-skeletal-disorders/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/April-2026-RBDA-Echo.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260305T150000
DTEND;TZID=America/New_York:20260305T163000
DTSTAMP:20250919T161632Z
CREATED:20250919T161632Z
LAST-MODIFIED:20250919T161632Z
UID:2045-1772722800-1772728200@rbdalliance.org
SUMMARY:RBD ECHO: Skeletal Manifestations of Gaucher Disease
DESCRIPTION:Skeletal Manifestations of Gaucher Disease\nDerralynn Hughes\, MBBS\, PhD \nProfessor of Experimental Haematology; Clinical Director of Haematology\, Oncology & Palliative Care; Lead Cancer Physician\nUniversity College London & Royal Free London NHS Foundation Trust\, UK \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-skeletal-manifestations-of-gaucher-disease/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/March-2026-RBDA-Echo.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260212T150000
DTEND;TZID=America/New_York:20260212T163000
DTSTAMP:20260209T182339Z
CREATED:20250919T161103Z
LAST-MODIFIED:20260209T182339Z
UID:2042-1770908400-1770913800@rbdalliance.org
SUMMARY:RBD ECHO: Hyperphosphatemic Familial Tumoral Calcinosis: Understanding Clinical Phenotype and Disease Mechanisms
DESCRIPTION:Hyperphosphatemic Familial Tumoral Calcinosis: Understanding Clinical Phenotype and Disease Mechanisms\nKelly L Roszko\, MD\, PhD  \nTenure-Track Investigator\, Mineral Homeostasis Unit National Institute of Dental and Craniofacial Research (NIDCR)\, National Institutes of Health\, Bethesda\, MD. \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/hyperphosphatemic/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/Feb-2026-RBDA-Echo-1.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T150000
DTEND;TZID=America/New_York:20260108T163000
DTSTAMP:20260105T171507Z
CREATED:20250919T160321Z
LAST-MODIFIED:20260105T171507Z
UID:2038-1767884400-1767889800@rbdalliance.org
SUMMARY:RBD ECHO: Camurati-Engelmann Diseases
DESCRIPTION:Camurati-Engelmann Diseases \nMichael P. Whyte\, MD \nProfessor Emeritus of Medicine\, Pediatrics\, and Genetics\, \nWashington University School of Medicine; \nFormer Director\, Center for Metabolic Bone Disease and Molecular Research\, Shriners Hospitals for Children – St. Louis; \nSt. Louis\, Missouri\, USA \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-camurati-engelmann-diseases/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/Copy-of-RBD-ECHO-Youtube-thumbnail.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T150000
DTEND;TZID=America/New_York:20251204T163000
DTSTAMP:20250918T170915Z
CREATED:20250918T170915Z
LAST-MODIFIED:20250918T170915Z
UID:2034-1764860400-1764865800@rbdalliance.org
SUMMARY:RBD ECHO: The Impact of Monoclonal Gammopathies on Bone Health
DESCRIPTION:The Impact of Monoclonal Gammopathies on Bone Health\nMatthew Drake\, MD\, PhD Chief\, Endocrinology and Metabolic Bone Service\, Endocrinology and Metabolic Bone Physician Hospital for Special Surgery (HSS)\, New York City \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-the-impact-of-monoclonal-gammopathies-on-bone-health/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/Dec-2025-RBDA-Echo.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T150000
DTEND;TZID=America/New_York:20251106T163000
DTSTAMP:20251104T171805Z
CREATED:20250918T164759Z
LAST-MODIFIED:20251104T171805Z
UID:2030-1762441200-1762446600@rbdalliance.org
SUMMARY:RBD ECHO: Heritable Non-OI Forms of Osteoporosis
DESCRIPTION:Heritable Non-OI Forms of Osteoporosis\nOuti Mäkitie\, MD PhD Professor of Pediatric Endocrinology\, Children’s Hospital\, University of Helsinki and Helsinki University Hospital\, Helsinki\, Finland Folkhälsan Research Center\, Helsinki\, Finland \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-heritable-non-oi-forms-of-osteoporosis/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/Nov-2025-RBDA-Echo.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251008T150000
DTEND;TZID=America/New_York:20251008T170000
DTSTAMP:20250904T185056Z
CREATED:20250903T160640Z
LAST-MODIFIED:20250904T185056Z
UID:1799-1759935600-1759942800@rbdalliance.org
SUMMARY:OI ECHO: Clinical and Genetic Evaluation of Nonaccidental Trauma Versus Osteogenesis Imperfecta (Virtual)
DESCRIPTION:Join us for an upcoming OI ECHO Session! October 8\, 2025 | 3:00pm Clinical and Genetic Evaluation of Nonaccidental Trauma Versus Osteogenesis Imperfecta Natasha Shur\, MD (Children’s National Hospital)
URL:https://rbdalliance.org/event/oi-echo-clinical-and-genetic-evaluation-of-nonaccidental-trauma-versus-osteogenesis-imperfecta-virtual/
LOCATION:Virtual Event\, United States
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/08/shur-Thumb.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251002T150000
DTEND;TZID=America/New_York:20251002T163000
DTSTAMP:20250905T151628Z
CREATED:20250905T151556Z
LAST-MODIFIED:20250905T151628Z
UID:2013-1759417200-1759422600@rbdalliance.org
SUMMARY:RBD ECHO: Maternal Mineral and Bone Metabolism During Pregnancy\, Lactation\, and Post-Weaning
DESCRIPTION:Maternal Mineral and Bone Metabolism During Pregnancy\, Lactation\, and Post-Weaning \nChristopher Kovacs\, MD\, FRCPC\, FACP\, FACE\, FASBMR.\nUniversity Research Professor\, Faculty of Medicine – Endocrinology\, Health Sciences Centre\, Memorial University of Newfoundland\, Canada\, \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-maternal-mineral-and-bone-metabolism-during-pregnancy-lactation-and-post-weaning/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/KOVACS-RBD-ECHO-Youtube-thumbnail.avif
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T150000
DTEND;TZID=America/New_York:20250911T163000
DTSTAMP:20250905T145824Z
CREATED:20250905T145824Z
LAST-MODIFIED:20250905T145824Z
UID:2003-1757602800-1757608200@rbdalliance.org
SUMMARY:RBD ECHO: Pulmonary Aspects of OI
DESCRIPTION:RBD ECHO: Pulmonary Aspects of OI\nRobert Sandhaus\, MD\, PhD \nCLICK HERE TO REGISTER TO ATTEND \nThe Rare Bone Disease TeleECHO Clinic Series is a medical educational program\, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes)\, focused on building capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Physicians of all specialties\, nurse practitioners\, physician assistants\, and other healthcare professionals with an interest in rare bone conditions are welcome to attend these monthly case-based telementoring presentations and discussions.
URL:https://rbdalliance.org/event/rbd-echo-pulmonary-aspects-of-oi/
CATEGORIES:General,RBD TeleECHO
ATTACH;FMTTYPE=image/png:https://rbdalliance.org/wp-content/uploads/2025/09/rBD-ECHO-thumbnail-Pulmonary-Aspects-of-Oi.avif
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