The Rare Bone Disease Alliance (RBDA) is a coalition of advocacy groups, clinicians, and researchers working together to improve the lives of those affected by rare bone disorders through education, research, and support.
The Rare Bone Disease Alliance, originally organized in 2006 as a patient advocacy network, evolved into the Rare Bone Disease Alliance which includes patient organizations and thought leaders in the rare bone disease field. The Alliance missions are: stimulating education on rare bone disease through working with professional medical and scientific societies, organizing its own meetings, and assisting patients and families affected by rare bone disease.
Patient Network Organizations
Meet the dedicated patient advocacy organizations that make up the Rare Bone Disease Alliance—each working to support, educate, and empower individuals and families affected by rare bone conditions.
Join the Alliance.
Strengthen the Voice for Rare Bone Disease.
If your organization supports individuals affected by rare bone diseases, we invite you to join the Rare Bone Disease Alliance. By becoming part of our network, you’ll connect with like-minded groups, share resources, and amplify your impact. To get started, simply fill out the contact form and we’ll be in touch.
