Rare Bone Disease TeleECHO Clinic Series

Presented by the OI Foundation in partnership with the Rare Bone Disease Alliance.

This series uses Zoom videoconferencing and takes place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session.

The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI).

The full schedule with links to register for specific session topics is listed below. Participants can also sign up to receive program reminders and updates here.

The interdisciplinary faculty in the Rare Bone Disease TeleECHO includes:

  • Laura Tosi, MD (Head Faculty) Children’s National Health System
  • Michael Collins, MD National Institutes of Health, NIDCR
  • Michael Lewiecki, MD University of New Mexico
  • Frank Rauch, MD Shriners Hospital for Children – Canada
  • Eric Rush, MD University of Kansas Hospital
  • Carlos Ferreira, MD National Institutes of Health, NHGRI
  • Dolores Shoback, MD University of California San Francisco
  • Michael P. Whyte, MD Washington University School of Medicine
Osteogenesis Imperfecta Foundation logo
ECHO Project for Rare Bone Disease
Jointly Accredited Provider Graphic

CME Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by the Osteogenesis Imperfecta Foundation and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

AMA Designation Statement

Project ECHO® designates this live activity for a maximum of 1.5 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Sample Agenda for 2026-2027 Rare Bone Disease TeleECHO Clinic Series

3:00-3:05 Housekeeping announcements and Speaker introduction
3:05-3:45 Main Presentation
3:45-4:00 Q&A for Main Presentation
4:00-4:15 Case Presentation #1 and Group Discussion
4:15-4:30 Case Presentation #2 and Group Discussion

YEAR 8 PROGRAM SCHEDULE

08/05/2026

 Inherited Causes of Renal PTH Resistance: PHP, BDE, and Eiken Syndrome

Jakob Höppner, M.D, Harald Jüppner, M.D

09/03/2026


 Pseudoachondroplasia
Jacqueline T. Hecht, PhD, MS

10/01/2026


 Radiographic evaluation of non-accidental trauma
Alistair Calder, BM BCH, FRCR

11/05/2026


 Intravenous iron-induced hypophosphatemia
Myles Wolf, MD, MMSc

12/03/2026


 Interpretation of variants of unknown significance in skeletal disease
Karen E. Heath, PhD, ErCLG

01/07/2027


TBD
TBD

02/04/2027


TBD
TBD

03/04/2027


TBD
TBD

04/01/2027


TBD
TBD

05/06/2027

 TBD
TBD

06/03/2027


TBD
TBD