RBDA Steering Committee
Physician Scientists
Eric T. Rush,
MD, FAAP, FACMG, CCD
Clinical Geneticist, Children’s Mercy Kansas City
Associate Professor of Pediatrics, University of Missouri – Kansas City
Clinical Associate Professor of Medicine, University of Kansas
Michael T. Collins,
MD Chief, Skeletal Clinical Studies Unit
Craniofacial and Skeletal Diseases Branch
NIDCR, NIH
Carlos Ferreira,
MD Staff Clinician, Skeletal Genomics Unit
Metabolic Medicine Branch
NHGRI, NIH
Dolores Shoback, MD
Professor of Medicine, UCSF
Endocrine Research Unit
San Francisco VA Medical Center
Laura Tosi, MD
Director, Bone Health Program
Children’s National Hospital
Washington, DC
Patient Organization Representatives
Michelle Davis
Executive Director
International FOP Association
Adrienne McBride
Executive Director
FD/MAS Alliance
Neena Nizar,
Ed.D
Founder and Executive Director
Jansen’s Foundation