Skip to content

  • Home
  • About Us
  • Patient Network Organizations
  • Scientific Advisory Panel
  • ECHO
  • PCOR
    • PCOR Toolkit
  • Contact Us

Rare Bone Disease TeleECHO Clinic Series

Presented by the OI Foundation in partnership with the Rare Bone Disease Alliance.

This series uses Zoom videoconferencing, and will take place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session.

The interdisciplinary faculty in the Rare Bone Disease TeleECHO includes:

  • Laura Tosi, MD (Head Faculty) Children’s National Health System
  • Michael Collins, MD National Institutes of Health, NIDCR
  • Michael Lewiecki, MD University of New Mexico
  • Frank Rauch, MD Shriners Hospital for Children – Canada
  • Eric Rush, MD University of Kansas Hospital
  • Carlos Ferreira, MD National Institutes of Health, NHGRI
  • Dolores Shoback, MD University of California San Francisco
  • Michael Whyte, MD Washinton University in St. Louis

In support of improving patient care, this activity has been planned and implemented by the Osteogenesis Imperfecta Foundation and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 1.5 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Click here to view recordings of past ECHO sessions.


YEAR 6 PROGRAM SCHEDULE

Please click on the session titles below to register to attend.

Thursday, April 3, 2025, 3:00 pm EST Secondary causes of pediatric osteoporosis Moira Cheung

Thursday, May 1, 2025, 3:00 pm EST
Bone Health Evaluations in Growing Patients: Children are Not Small Adults Catherine M. Gordon

Thursday, June 5, 2025, 3:00 pm EST Expanding the Spectrum of Gorham Stout Mike Kelly and Mike Dellinger

If you have a suggestion/request for a future topic or speaker, please email Michael Stewart at: mstewart@oif.org


Thursday, March 6, 2025 3:00 pm EST

Filaminopathies

Stephen Robertson, FRACP FRSNZ

Thursday, February 6, 2025 3:00 pm EST

(Rare) Genetic Disorders of Vitamin D Metabolism

Grace Lounder Meier, MD

Thursday, January 9, 2025 3:00 pm EST

A Deep Dive into CODAS

Grace Lounder Meier, MD

Thursday, December 6, 2024; 3:00 pm EST

Phosphorus: Rare Bone Disease History

Michael Whyte, MD

Thursday, November 7, 2024; 3:00 pm EST

Ollier Disease/Maffucci Syndrome

Nara Sobreira, MD, PhD

Thursday, October 3, 2024; 3:00 pm EST

Expanding the Phenotypes of Rare Skeletal Disorders
Deborah Krakow, MD

Thursday, September 5, 2024; 3:00 pm EST

Differential Diagnosis of Heterotopic Ossification

Smita Jha, MD

Thursday, August 1, 2024; 3:00 pm EST

Navigating the challenges of managing heterotopic ossification
Edward Hsiao, MD, PhD


Click to view more past ECHO sessions

Thursday, December 7, 2023; 3:00pm EST
Achondroplasia
 Julie Hoover-Fong, MD, PhD, FACMGG Professor, Department of Genetic Medicine Director, Greenberg Center for Skeletal Dysplasias Member, Miller-Coulson Academy of Clinical Excellence
RECORDING: Achondroplasia



Thursday, November 2, 2023; 3:00pm EST
RECORDING: Skeletal Nosology
Andrea Superti-Furga, MD, Professor Emeritus University of Lausanne


Thursday, October 5, 2023; 3:00pm EST
RECORDING: New and Emerging Therapeutics for Rare Bone Diseases
Michael Collins, MD National Institute of Dental and Craniofacial Research National Institutes of Health


Thursday, September 7, 2023; 3:00pm EST
RECORDING: Skeletal Effects of Gender-Affirming Medical Therapy in Transgender and Gender-Diverse Youth
Janet Lee, MD, MPH, MAS Janet Lee, MD, MPH, MAS 


Thursday, August 3, 2023; 3:00pm EST
RECORDING: The Genetic Testing has come back: Now What?
Eric Rush MD, FAAP, FACMG Clinical Geneticist at Children’s Mercy Hospital and the University of Kansas Medical Center. Professor of Pediatrics at the University of Missouri-Kansas City.


Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an ineligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Tracy Hart, BS; Melissa Bonardi, BA

The following planners/presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.

 
NameCompany NameRole/Nature of Relationship
Laura Tosi MDUltragenyxResearcher
 Children’s National HospitalEmployee
   
Michael Collins MDRegeneronAdvisor
Carlos Ferreira MDInozyme PharmaCollaborator as part of CRADA
Michael E Lewiecki MDNM Clinical ResearchEmployee
 AmgenResearcher, Consultant, Speaker
RadiusResearcher, Consultant, Speaker
 Kyowa KirinConsultant, Speaker
 AngitiaResearcher, Consultant
 UltragenyxResearcher
 AscendisConsultant
   
Frank Rauch MDBioMarinAdvisor
 UltragenyxAdvisor
Eric Rush MDAlexion/Astra ZenecaResearcher, Consultant, Speaker
Kyowa KirinConsultant, Speaker
 UltragenyxResearcher, Consultant
 Be Biopharma, Inc.Consultant
 InozymeConsultant
 IpsenConsultant
   
Dolores Shoback MDBone Health TechnologiesResearcher
   
Michael Whyte MDKyowa KirinConsultant
 Washington University, St. LouisResearcher

All of the relevant financial relationships listed for these individuals have been mitigated.

If you have any questions, please contact Michael Stewart at: mstewart@oif.org

©2025 | WordPress Theme by SuperbThemes