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  • 2025 Annual Maher Family Research Grant – Applications Due

    ​​​​​​​Calling all researchers, faculty members, senior postdoctoral trainees, and research associates, Soft Bones Inc., The US Hypophosphatasia Foundation, is now accepting applications for the 2025 Annual Maher Family Research Grant. We are interested in promoting the development of innovative research by new and established investigators by offering a $25,000 seed grant for research that is directly related to…

  • RBD ECHO: Heritable Non-OI Forms of Osteoporosis

    Heritable Non-OI Forms of Osteoporosis Outi Mäkitie, MD PhD Professor of Pediatric Endocrinology, Children’s Hospital, University of Helsinki and Helsinki University Hospital, Helsinki, Finland Folkhälsan Research Center, Helsinki, Finland CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension for Community…

  • Washington, DC Metabolic & Rare Bone Disease Club Dinner November

    Pooks Hill Marriott 5151 Pooks Hill Rd, Bethesda, MD, United States

    Join fellow Washington, DC area endocrinologists, rheumatologists, geneticists and orthopaedic surgeons for a multi-disciplinary dinner meeting held every quarter and focused on new developments in research, diagnosis, and treatment of metabolic and rare bone disorders. The November 13th session will feature Dr. Pedro A. Sanchez-Lara speaking on Achondroplasia presented by BioMarin.

  • RBD ECHO: The Impact of Monoclonal Gammopathies on Bone Health

    The Impact of Monoclonal Gammopathies on Bone Health Matthew Drake, MD, PhD Chief, Endocrinology and Metabolic Bone Service, Endocrinology and Metabolic Bone Physician Hospital for Special Surgery (HSS), New York City CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension…

  • RBD ECHO: Camurati-Engelmann Diseases

    Camurati-Engelmann Diseases  Michael P. Whyte, MD Professor Emeritus of Medicine, Pediatrics, and Genetics, Washington University School of Medicine; Former Director, Center for Metabolic Bone Disease and Molecular Research, Shriners Hospitals for Children – St. Louis; St. Louis, Missouri, USA CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical…

  • Washington, DC Metabolic & Rare Bone Disease Club Dinner January

    Pooks Hill Marriott 5151 Pooks Hill Rd, Bethesda, MD, United States

    Join fellow Washington, DC area endocrinologists, rheumatologists, geneticists and orthopaedic surgeons for a multi-disciplinary dinner meeting held every quarter and focused on new developments in research, diagnosis, and treatment of metabolic and rare bone disorders. The November 13th session will feature Dr. Pedro A. Sanchez-Lara speaking on Achondroplasia presented by BioMarin.

  • RBD ECHO: Hyperphosphatemic Familial Tumoral Calcinosis: Understanding Clinical Phenotype and Disease Mechanisms

    Hyperphosphatemic Familial Tumoral Calcinosis: Understanding Clinical Phenotype and Disease Mechanisms Kelly L Roszko, MD, PhD Tenure-Track Investigator, Mineral Homeostasis Unit National Institute of Dental and Craniofacial Research (NIDCR), National Institutes of Health, Bethesda, MD. CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with…

  • RBD ECHO: Skeletal Manifestations of Gaucher Disease

    Skeletal Manifestations of Gaucher Disease Derralynn Hughes, MBBS, PhD Professor of Experimental Haematology; Clinical Director of Haematology, Oncology & Palliative Care; Lead Cancer Physician University College London & Royal Free London NHS Foundation Trust, UK CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership…

  • RBD ECHO: Precision Medicine Modeling of New Skeletal Disorders

    Precision Medicine Modeling of New Skeletal Disorders Lindsay C. Burrage, MD, PhD Associate Professor, Department of Molecular and Human Genetics; Attending Physician, Inborn Errors of Metabolism & Skeletal Dysplasia Clinics, Baylor College of Medicine CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with…

  • RBD ECHO: Skeletal Dysplasias in the Plain Community

    Skeletal Dysplasias in the Plain Community Grace Loudon Meier, MD Family Medicine Physician; Director of Adult Services Program, Clinic for Special Children, Pennsylvania REGISTER HERE! The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), focused on building capacity to safely and effectively…

  • RBD ECHO: Osteoblast-Driven High Bone Mass Diseases

    Osteoblast-Driven High Bone Mass Diseases Natasha Appelman-Dijkstra Professor of Bone and Mineral Disorders, Director Academic Training Program Internal Medicine, Chair Center for Bone quality Leiden Leiden University Medical Center (LUMC), the Netherlands CLICK HERE TO REGISTER TO ATTEND The Rare Bone Disease TeleECHO Clinic Series is a medical educational program, a partnership with Project ECHO™…

  • Washington, DC Metabolic & Rare Bone Disease Club Dinner June 2026

    Pooks Hill Marriott 5151 Pooks Hill Rd, Bethesda, MD, United States

    Join fellow Washington, DC area endocrinologists, rheumatologists, geneticists and orthopaedic surgeons for a multi-disciplinary dinner meeting held every quarter and focused on new developments in research, diagnosis, and treatment of metabolic and rare bone disorders. The November 13th session will feature Dr. Pedro A. Sanchez-Lara speaking on Achondroplasia presented by BioMarin.

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